Subject: Adult
Primary diagnoses:
psychosomatic disorder
Length of illness:
5 years, maybe longer
Treatment:
Iodoquinol x 2, metronidazole x 2,
Severity of symptoms:
moderate
Outcome:
still symptomatic

Hi there ...
I've had DF for at least 5 years and probably longer. Vague health/GI problems that I could never quite put my finger on - but I knew something was wrong. Not poorly enough to attract any serious attention from medical industry.
Over last 3 years as my own suspicions ebbed and flowed I would try a course of metronidazole or iodoquinol every now and then. (2 of each did not get rid of DF). Then I would think I was on the wrong track and try to understand these health symptoms from some other angle ... Those symptoms: general malaise, fatigue, insomnia, distended abdomen, depression, an apparent malabsorption syndrome : during each course of iodoquinol those same symptoms would abate - and come right back after discontinuation. Physicians finally interested now - prescribed a course of both the above drugs at the same time.
This whole thing has been incredibly frustrating as the med. world was not interested in DF. I still don't know that DF is the problem but I am interested in the similarities between my symptoms and those of giardia infection as well as that of entamoeba hystolytica. I wonder if DF won't soon be found to be a pathogen from which many people are seen to suffer. (Giardia was considered non-pathogenic not long ago). .....

Hi Jackie,

....last two tests were neagtive for DF. i'm somewhat better after the antiparasitic treatment mentioned below and with the supplements. now i think it's flora imbalance that is the biggest problem. agggh. i can't overstate the positive results while i was on the scrips - each time but especially when both at the same time! but it didn't last.
ciao
.

...W

Hello Jackie,

Here's the summary ... On about 4 straight stool tests, DF negative.

Symptoms lessened gradually over the last 8 months or so - with great care on my part. (I spend perhaps C$100 a month on supplements such as flax seed oil, green food drink, high-quality protein, and multis).

The biggest news ... the prescription pancreatic enzymes that I had found
helpful but with side-effects were almost instantly replaced with 1 tsp. of
apple cider vinegar 3 times per day after meals. I never would have
believed this - which is why it took so long for me to get around to it.
Within *2 weeks* my weight was approaching my normal life body weight. ( I have had a very difficult time keeping weight on.)

So the diagnosis is: malabsorption, dysbiosis due to likely bacterial
overgrowth and bowel flora imbalance.
W.
Recent studies (Dagci H, Protozoon infections and intestinal permeability. Acta Trop 2002 Jan;81(1):1-5
) have shown that pathogenic parasites cause damage to the intestinal wall which is all the more reason suitable stool collection and testing methods should be used to ensure early detection in symptomatic patients - Jackie.


Subject: Adult
Primary diagnoses:
stress related IBS
Primary diagnoses:
psychosomatic disorder
Length of illness:
8 years
Treatment:
parasite killing herbs and other natural therapies
Severity of symptoms:
moderate to severe
Outcome:
Great reduction in symptoms after 2 Iodoquinol treatments.

Hi!
I just read your story about IBD symptoms and parasites.
I have been suffering symptoms which were diagnosed eight years ago as IBS.
After years of trying special diets and supplements and herbs which cost a fortune and suffering abdominal pain, headaches, fatigue, depression etc. I have just been to a doctor who had the same test as you have had done (triple stool sample tested by Great Smokies Diagnostics) and discovered the Dientamoeba fragilis. I can trace the symptoms back to a trip to Europe in 1991.

I went to the first specialist in 1992 and he didn't bother to test for this, told me that the good news was that I didn't have cancer or Crohn's disease and that I would just have to learn to live with the symptoms of IBS which were largely stress related!
I am now on a course of anti parasitic tablets which are based on concentrated oregano. At the moment I have been taking them for less than a week and actually feel worse, but I am hoping to improve soon! W. Australia

Hi!,
...I had a test in Feb. that came back as having a small amount of the parasite still remaining. I had been off the ADP (oregano oil) for a couple of months and taking a product called MSM which is basically natural sulphur, and feeling generally quite well. I had also been sticking very strictly to my dairy and sugar free diet. ..My abdominal symptoms were practically gone. I still have a continuous runny nose and sore throat however, headaches and muscle tension as well as acne and emotional ups and downs. My doctor has put me back on both ADP and MSM together to try to kill off the last of it. His explanation to me was that the MSM loosens the parasite from the walls and the ADP kills it. Well whatever its doing it's making me feel disgusting!! It's very frustrating as I thought I was over the worst of it. Now I'm back to feeling fatigued and 'Flu-y' all the time. The doctor says that this is just the 'de-tox' and not a result of side effects from the medication. I see him again in May and I guess I will have to do another stool test to get the all clear. Hope you are doing OK.
W

Hi
I am feeling MUCH better! .....continuing on a no sugar no dairy diet has helped me have more energy, my skin is clearing up at last and the stomach pains are largely gone. I will be doing another test next week for the parasite. Wish me luck!!! It will be a month 'til I get the results.
W

Hi,
I waited to reply to you as I was still awaiting results. this whole episode is getting so expensive that I put off having the test and visiting my doctor again. The bad news is that the test came back with an increased amount of the parasite! I knew I had been feeling rotten but was hoping that it was all in my mind! My first test in October last year was 'many', my second test in about March was 'few'. I then continued the treatment 'til July and then took the test in early August. I saw my doctor two weeks ago to get the bad results! He was a bit surprised! He said that people he had treated before, with the ADP and MSM had rid themselves of the bug in 3 months. His only explanation was that I may be being reinfected!?

Anyway he is trying a different treatment which combines two products, 'Paracea' (Biceuticals) which contains Artemisinin, Black walnut and Citrus seed, and one from MMS Pro which is Standardised Olive Leaf pro which is just Olive Leaf Powder.!? Anyway, I am having the same effect, I feel sicker as the parasite is being killed! I see the doctor again in December. $550 later!!!! Plus I am taking a hormone balancing remedy called Indolplex which is working! But that costs $32 a month! I think this Parasite is actually a government plot! Thanks again for you're interest and for spreading the word!
Wendy W

I took two treatments of the Iodoquinol before Christmas, and now I am just waiting. I will get another test done as soon as I have a spare $200.
But generally I am a lot better. There were some yukky symptoms from the drug, nausea, tiredness, abdominal pain and acne. It passed though. It's a little hard to tell how well I am as I have had about three different
viruses since Xmas. I have also treated both my children as one of them tested positive to DF in December. He hasn't been complaining of stomach pains like he was before which is a good sign. I will let you know when I get the test results, hopefully some time in February.
WW
"W" wrote that she is almost symptom free as at Nov 01