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Adult Primary diagnoses: stress related illness Length of illness: 2 years Treatment: Paromomycin Severity of symptoms: moderate to severe Outcome: cured Hello Jackie, My name is Bart.I live in the Netherlands. While searching the web for Dientamoeba fragilis I came across your e-mail of October 1998. At the moment I experience the same thing you described. For two years I felt really sick (weight loss, headache, vomiting, fatigue etc.). Recent lab research has shown that I have been infected by DF. However, my doctor tells me this parasite cannot be responsible for the symptoms I faced. He says parasite is considered to be non-pathogenic and symptoms are only diarrhea and abdominal pain (Not seriously enough to treat). I think/ hope you found a good doctor and medicine for treatment. I recently found an other doctor who prescribes paromomycine (Humatin) or clioquinol. Thank you for your help. Bart Hi Jackie, Thanks for your quick response after my first mail. Your web site was very informative. To find out I was not the only one struggling was encouraging. ....Reading the web site really encouraged me to find a sollution to get rid this parasite. Meanwhile have been visiting the docters and finally last week I started treatment with Paromomycine (5 days) in combination with food supplements. After a few days I felt better (clear head). Now the paromomycine is finished, I continue with food supplements. I expect to gain weight soon. .....Next week I will have my faeces checked again. ......For the time being I am really happy to feel better. The doctors in Amsterdam (AMC) still could not tell me wether DF was pathogenic or not. I know DF made me feel terrible - while the doctor told me it was just stress. Thank you for putting al the information together. I was sorry to hear you are still struggling and I hope you'll find a sollution soon. You will hear from me as soon as the lab sends me concrete results. Thank you once again. Good luck Bart Hi Jacky, Indeed it has been a long time. A lot has changed for me since then. As a told you I finally found a second doctor who suggested testing for parasites. After positive tests (TFT) for parasites (dientamoeba fragilis) the treatment with paromomycine (=Humatin = Gabroral) worked out fine. I started to feel better after a while. No more sleepless nights, no more vomiting and abdominal pain. The headaches were over and most important because of all this I started to feel alive again. After the parasites were gone (the last TFT tests from the specialized lab in Amsterdam showed negative for parasites) it took me a while to get rid of candida. The treatment was to start a diet no sugar, less milk and some food supplements (Bifidum). I also tried nystatine and other medicine, but that did not really work out. I think I finally got rid of the candida as well. The only thing left for me is to regain weight again. I lost 8 kilo’s during the two years the parasites were active which is a lot because my weight was only 68 kilos. Meanwhile I finished my studies and got a very good grade for my final thesis. Currently I am applying for a job… I want to thank for your support. The information on your site really helped me a lot. Especially in the discussions I had with my family doctor after parasites (DF) were found. He still thinks DF is non-pathogenic and my symptoms were a result of stress. I still cannot figure out why my family doctor did not suggest testing for parasites in the first place. Take care Bart Subject: Adult Primary diagnoses: psychosomatic disorder Length of illness: 10 years approx. Treatment: Natural therapies. Iodoquinol x 1 treatment Severity of symptoms: moderate to severe Outcome: cured after Iodoquinol treatment Dear Jackie, Thanks so much for your reply. Yes, I have DF. I've probably had it for at least 10 yrs. Great Smokies Diagnostic Labs just sent me back the results of my stool test and told me I had it. I've done much research on it and concluded that iodoquinol is the best drug for me for it. ..... My symptoms for many, many years have been horrible gas, very very sensitive stomach (even if someone sitting next to me on a couch moves around I get pain from the vibration his movement caused in my stomach), headaches, fatigue, loss of appetite, numerous food allergies, and I'm sure other symp. too. Anyway, if you could please share with me whatever you know about this illness, I'd appreciate it. Thanks. -S Hi Jackie! Here is some more info. I want to share with you: I couldn't find iodoq. anywhere so I'me taking tetracycline 500 mg, 4 times a day (every 6 hours) for 10 days. I'm doing this based on the advice given in an article about DF written in a Canadian med Jrnl I long ago suspected parasites but I ruled it out. I was thrown off when I kept reading that if a person does not have diarrhea, he probably does not have parasites. Although I move my bowels every 4-6 hrs usually, my stools are always on the dry side, so I assumed that can't be called diarrhea. I never have water come out in my stools. ..... For years the doctors found nothing wrong with me and told me it was all in my head. When I finally had this DF confirmed, I started to cry. Protein foods react fine with me. It's the carbos - even the complex carbos - that really weigh me down, even after only a small amount. I could start a meal starving and after 3 bites be so full that I have to force myself to finish the meal bec I know otherwise I'll be hungry later. DF is usually killed by the HCL in the stomach (it has no cyst to protect it), but since I have no HCL in my stomach, I caught it. I've been taking HCL pills with my meals for years and feel far, far better after taking them. Do you have like a cleft in your tongue? mine looks like a knife cut a little path in it in the middle. Just wondering if its from DF... Really thanks so much for all your help! S Hi Jackie, I feel great. I took the iodoquinol 650 mg three times a day for three weeks, and my gas got far better. I still had burning in my stomach so I got myself tested for H Pylori which I did indeed have, and have since got rid of that too. What can I say, I just feel great: no more gas, and no more chronic stomach pain. I wish the same for you, and I thank you for helping me in my time of need. Best regards,
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